Through research, education and support, Prader-Willi Syndrome Association (USA) strives to improve the quality of life for all individuals living with Prader-Willi syndrome (PWS). Organized in 1975, we are dedicated to serving individuals affected by PWS, their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations; an annual national conference; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level.
Website: pwsausa.org
Email: national@pwsausa.org
Address: 5700 Midnight Pass Road Suite 6
Sarasota, FL 34242